Gilda's Club

Support For Those With Chronic Disease

Gilda’s Club is a nonprofit organization focused on providing support, tools, and advocacy to persons affected by chronic diseases.

Introduction

Gilda’s Club is a nonprofit organization focused on providing support, tools, and advocacy to persons affected by chronic diseases. The organization consists of trained psychologists, medical experts, and healthcare professionals. This foundation staff works tirelessly in providing numerous resources to support patients with chronic diseases and their caregivers.

Through our numerous programs, you’ll get all the support and care you need while striving to overcome that illness.

We’re continuously publishing scientific and valuable content to help you manage your condition and live longer, so ensure to visit more often to discover what we’re up to.

Essential Care for Patients With Chronic Diseases

These are some of the ways to improve essential care for patients with chronic diseases.

Improve Care Coordination

Most people with chronic diseases have to visit several healthcare professionals, and it's sometimes hard to create effective coordination between these specialists. Communication and care coordination is essential to health care providers and their patients as it results to good health outcomes. One best way to strengthen communication is through the use of a tool like Situation-Background-Assessment-Recommendation (SBAR). This tool, initially created for the Navy before being adopted by healthcare offices, helps make interactions between diverse more effective and effortless. A recent study showed that using SBAR can reduce communication errors between teams from 31 to 11 percent, making it valuable for improving care coordination.

Target Patient Education

Several studies have shown that educating a patient about their ailment can substantially impact their care. With the tips and information a patient receives concerning their health, they'll manage their care with fewer complications. Patient education helps to improve chronic patients' health outcomes, reducing the pains. It'd be best if you start educational campaigns on ailments that are common in your practice. Consider sending periodic newsletters containing tips for managing the diseases. For example, you can send information on prescribed corticosteroids if you have lots of asthma patients' visits.

Implement Automated Communication

Technology is chronic care management's best friend. It has helped to improve the quality of care in patients and good health outcomes. More so, the use of automated technology helps to reduce costs for both healthcare professionals and patients. Studies indicated that one in three patients admitted to hospitals due to a chronic disease had no contact with medical professionals after discharge. As such, about 20 percent had to be readmitted again within 30 days. Consider reducing your patient's complications as healthcare personnel by using an automated system in sending off reminders for scheduling follow-up appointments.

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Important Knowledge for Taking Care of a Patient With Chronic Diseases

The following are vital knowledge you'll need while taking care of a patient with chronic diseases.
  • As a physician, always notify your patient about tools and resources that can help them learn to make informed decisions about managing their health—for instance, a support group for people with the same condition.
  • Caregivers will have to work with healthcare providers and patients to develop a comprehensive patient-centered care plan. Patients should be encouraged to actively be involved in their care while taking part in treatment decisions when required.
  • The roles and responsibilities of all the care providers will need to be clarified. This practice helps the caregiver to coordinate care and manage test results.
  • All healthcare personnel involved in treating the patient must be familiar with all relevant clinical practice guidelines made available through appropriate specialty societies.

Programs We Offer

Some of the programs we offer to assist chronic disease patients include:

Case Management

Our professional social workers handle case management programs to help you cope better with your illness. Gilda's Club NYC offers free case management online and offline to chronic disease patients such as people who have cancer or Parkinson's disease and their post-treatment survivors. The case management program focuses on the practical challenges that result from living with chronic diseases.

Support Groups

Consider joining a support group led by professional social workers based on the specific illness you have. There are provisions for both offline and online support groups. Online support groups are also available in live chat support.

Education Workshops

Leading experts provide updated information in a one-hour online educational cancer workshop. However, there's an option for an over the telephone workshop. We also offer publications by experts on issues relating to different chronic diseases. If interested in registering for the workshop, fill the form here.

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